Accra, April 13, 2026 — The Anidaso Parkinson’s Disease Foundation is calling for sustained public education and stronger institutional support for persons living with Parkinson’s disease, warning that stigma and misinformation continue to hinder early diagnosis and care.
The appeal was made during the “Pedal for Parkinson’s 2026” event in Accra, organised as part of activities to mark World Parkinson’s Disease Day under the theme “Moving Together for Hope.”
The programme featured a 25-kilometre ride, a 5-kilometre ride, and a virtual participation option, and was held in collaboration with partners including Yenko Mobility, the Ghana Cycling Federation, and the Gladiators Cycling Club.
Speaking at the event, Mr Andrew Jacobs-Bilson, Executive Secretary to the Foundation’s Founder, Vida Obese, said the campaign was aimed at correcting misconceptions surrounding the condition while encouraging early detection and treatment.
He noted that public discussion around Parkinson’s disease had increased following disclosures by individuals living with the condition, which had helped reduce silence and stigma around the illness.
Mr Jacobs-Bilson explained that many affected persons still conceal their condition due to fear of discrimination, particularly in communities where symptoms such as tremors are wrongly interpreted as spiritual or supernatural phenomena.
He stressed that Parkinson’s disease is a medical neurological disorder requiring clinical management, adding that while it has no cure, symptoms can be managed with appropriate medication and care.
He also highlighted the growing burden on caregivers, noting that families often bear emotional, physical, and financial strain in supporting patients over long periods.
On treatment costs, he indicated that key medications such as Levodopa remain expensive, placing consistent financial pressure on patients who require long-term therapy.
Mr Jacobs-Bilson said the Foundation is engaging partners, including pharmaceutical companies, to explore subsidy arrangements and improve access to essential medication.
He further raised concern about emerging cases among younger age groups, even though ageing remains the primary risk factor.
He cited prolonged exposure to certain agricultural chemicals, including Paraquat, as a possible contributing factor that requires further public health attention.
The Foundation reiterated its commitment to expanding education on symptoms, risk factors, and available treatments, while advocating for improved care systems and reduced stigma.
It also urged the public to seek accurate medical information and support persons living with neurological conditions rather than isolate them.
GHBUSS
April 13, 2026
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